Advance care planning is the process of making decisions about the medical and personal care you wish to receive in the future if you become unable to make those decisions yourself. It ensures that your loved ones, caregivers, and medical team understand your preferences and can advocate for your wishes.
What does advance care planning cover?
Advance care planning covers a range of considerations, including:
where you would like to receive care (e.g., at home, in a care facility, or in a hospital)
whether you wish to receive life-sustaining treatments such as resuscitation
your preferences regarding organ donation
specific treatments you do or do not want in certain medical situations
personal comfort preferences, such as music, food choices, room temperature, and clothing style.
Why is advance care planning important?
Advance care planning benefits not only you but also those who care about you. Without a clear plan, family members and caregivers may struggle to make decisions on your behalf, leading to stress and uncertainty. Think of advance care planning as a gift to your loved ones – ensuring they can honour your wishes with confidence during difficult times.
How to create an advance care plan
Creating an advance care plan does not have to be complicated. The key steps include:
Document your wishes – write down your preferences regarding medical treatments and personal care.
Discuss with loved ones – share your wishes with family members, close friends and caregivers.
Ensure legal recognition – formalise your plan through legal documents to ensure it is honoured.
Advance Decision to Refuse Treatment (Living Will)
In England, Wales, and Northern Ireland, a legally binding document known as an Advance Decision to Refuse Treatment (also called a 'living will') allows you to specify treatments you wish to refuse, such as life support.
In Scotland, while such a document is not legally binding, doctors consider it when making medical decisions. Scotland also has a system known as the Anticipatory Care Plan (ACP) for recording advance care wishes.
Lasting Power of Attorney
Another essential part of advance care planning is setting up a Lasting Power of Attorney for health care and financial decisions. A Lasting Power of Attorney allows you to appoint a trusted person to make decisions on your behalf if you become unable to do so. Without a Lasting Power of Attorney, a court order is required, which can be time-consuming and costly.
Can advance care plans be changed?
Yes, your advance care plan is not set in stone. Your views and circumstances may change over time, and it’s important to review and update your plan as needed. Regular discussions with loved ones and caregivers ensure your plan remains aligned with your wishes.
Advance care planning for carers
If you are a carer for someone else, it is essential to:
understand their advance care plan and ensure it is accessible to medical professionals
designate an alternate caregiver in case you are unavailable
include essential details such as medications, medical conditions and personal preferences
consider your own advance care plan to ensure you are also prepared.
When should you start advance care planning?
The best time to start advance care planning is now. Advance care planning is not about giving up on life; it is about being proactive. Regardless of age, having these conversations early provides peace of mind and ensures your wishes are honoured.
Steps to take today
Start the conversation – discuss your wishes with your loved ones.
Write it down – document your preferences in a clear and accessible format.
Consider legal options – create a living will or Lasting Power of Attorney if applicable.
Review and update regularly – ensure your plan evolves as your needs and preferences change.
Taking these steps today will provide both you and your loved ones with peace of mind for the future.